I’m Free!! It’s been 9 days since I was released from the hospital!
So rewind a bit …
In May I had my supervisor drive me to the hospital from
work because my oxygen and heart rate kept getting bad. I was hospitalized for
acute lung failure and tachycardia.
To be honest, it had been going on for months. The feeling
of suffocation and dizziness had started causing panic attacks that my
therapist was helping me work through.
“Why didn’t you see your doctors?” Because I had messed up
my health insurance. My doctors were aware and we were waiting for SSA to
finish processing my request to reinstate my Medicare Part B so I could
schedule the needed appointments. But the process was taking forever.
The day I was admitted I was supposed to be going to a local
disability conference. Instead I was taken to the ER. After 2 weeks I was
medically stable, but my Medicare plan wasn’t reinstated yet and we couldn’t
guarantee I’d have access to the life sustaining equipment I need. The hospital
gave me the option to stay until my insurance was fixed and I took it.
They tried to help move things along but unfortunately hit a
brick wall. In the end, friends and family convinced me to reach out to
politicians for help, and it worked! On day 50 of being in the hospital my
Medicare Part B was reinstated! Two days later I was released and have been
staying at my grandmother’s since.
Now I’m adjusting to my new normal. My oxygen bottles have
gotten larger, my liter flow has gone up, and I have some weight to lose to
help my lung.
Wish me luck 🤞… 7/21/24
And a HUGE shoutout to my best friends! I wouldn’t be able
to live wild in the world without them <3
