Officially winter. Ankle pain/weakness has officially begun! Yay!! 😧
Saturday, December 17, 2016
Friday, December 16, 2016
Wednesday, December 14, 2016
Sunday, December 11, 2016
Friday, December 02, 2016
Made an appointment with my lung dr to be re-certified for my med O2 & to get a RX for my vent mask bc its an old model. #ChronicLife
Thursday, December 01, 2016
Wednesday, November 30, 2016
Friday, November 25, 2016
Tuesday, November 22, 2016
Monday, November 21, 2016
Sunday, November 20, 2016
Saturday, November 19, 2016
Tuesday, November 15, 2016
Can't wait for Thurs when I can hide in the house again ♡
------------------------------
Getting lost 2x in the city during rush hour did not help me recover from last night's drive on the thru way.
------------------------------
Did I ever mention how much I enjoy when other people drive? It allows me to hide during left turns across 3 lanes ... but not yesterday
------------------------------
Tonight BF is driving ♡♡
Sunday, November 13, 2016
Checked the mail & found a "are you still disabled" packet from @SocialSecurity. Just went through this not 2yrs ago #chroniclife
------------------------------
What part of "permanently disabled since birth" do they think will change? Jokes on them, I've gotten worse. #chroniclife
------------------------------
The more independent & "normal" I try to be the more I'm reminded I'm not with lovely additions to my file. 😡 #chroniclife
I think I learned why coffee helps me focus & why albuteral helps with my anxiety in stressful situations: http://healthline.com/health/adhd/ca...
Saturday, November 12, 2016
Monday, November 07, 2016
Tuesday, November 01, 2016
Monday, October 31, 2016
Sunday, October 30, 2016
Friday, October 28, 2016
Monday, October 24, 2016
Sunday, October 23, 2016
Thursday, October 20, 2016
Wednesday, October 19, 2016
Sunday, October 16, 2016
Saturday, October 15, 2016
Friend just sent this to me. "Oxygen bar" ... does sound way cooler than "concentrator." I'm calling it that from now on. #marketingstrategy
Friday, October 14, 2016
Wednesday, October 12, 2016
Tuesday, October 11, 2016
Saturday, October 08, 2016
Wednesday, October 05, 2016
Tuesday, October 04, 2016
Monday, October 03, 2016
Headache gone, eyeballs still hurt, radiating stomach pain has decreased but still there. Gah 😧 ... #chroniclife
------------------------------
Errin spooniesnaps: @spooniesnaps on Oct 3, 2016
I hope your day got better
Courtney: @co2infused on Oct 5, 2016
Thank you so much ♡ That day didn't but yesterday was, and today was better than that.
Monday, September 26, 2016
Sunday, September 25, 2016
Friday, September 23, 2016
Thursday, September 15, 2016
So my vent tech was in shock bc I gave back my portable concentrator. He said I'm the 1st; they have a waiting list for them. #chroniclife
------------------------------
I'm also his lightest weight client & w/ a bad back. He agreed & laughed as he left with it. Sticking with the tanks. #chroniclife
Saturday, March 05, 2016
A beautiful tale about playground curiosity and new friendship ♡
Quote The Mighty @TheMightySite on Mar 5, 2017
When no adults stopped a girl's questions about my daughter's skin https://themighty.com/?p=391637
------------------------------
I'll always be thankful of how my own parents encouraged me to speak for myself about my conditions & not be offended by genuine questions.
------------------------------
I've made a point of emphasizing the normality of what I live with & for the most part had positive -occasionally perplexed- responses to it







































