Saturday, December 24, 2016

Officially winter. Ankle pain/weakness has officially begun! Yay!! 😧

Saturday, December 17, 2016

So I missed my alarm & an appointment but I guess I needed that sleep 😫 #chroniclife 


Making placek with Pa ♡ #christmas2016

Friday, December 16, 2016



When you rush out of the house, forget O2 & have to walk a block + 3 flights of stairs going each way. #gladimnotdriving #chroniclife

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I probably should of checked when I collapsed on the stairs ... I'm guessing low 60s? +Side: city is pretty in snow #chroniclife

Wednesday, December 14, 2016

Why am I the lucky one?

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I shouldn't be. I shouldn't be.

Sunday, December 11, 2016

🎵 It's that time of year for winter cheer. For reindeer & snow bells chiming. 🎵

Wednesday, December 07, 2016


Added an oxygen & heartrate tracker to my daily pages. #bujo #bulletjournal #ChronicLife

Friday, December 02, 2016

Update: doctor approved my O2 & says I shouldn't have anymore issues with coverage. Also got my prescription for my mask. #ChronicLife

Quote Courtney @co2infused on Nov 21, 2016
Made an appointment with my lung dr to be re-certified for my med O2 & to get a RX for my vent mask bc its an old model. #ChronicLife

An apple a day does NOT keep the doctor away. Asking my dr about food allergies. Plus side is cooking kills the allergens. #chroniclife

Thursday, December 01, 2016


Tonight I fell in luv with pies in skillets. The crust was crispy and the filling full of flavor ♡ @mmdesign716

Wednesday, November 30, 2016

No matter how many clothes I get rid of my closet never seems empty. I swear it multiplies as I sleep 😫 #downsizing #fail

Friday, November 25, 2016

That moment when your comfy in bed & realize the vent tubing popped off.



As for #NaNoWriMo2016: I lost my steam. I didn't get anything written this past week. But I'm not giving up ... I will finish it <3


I hope you had a crazy #Thanksgiving! Be safe this #BlackFriday ... Me? I'm staying home with music <3

Tuesday, November 22, 2016


This is what happens when you forget to cap your micro-fine pen before zipping it up the night before 😯 #bulletjournal

Added this nifty medicine tracker to my daily spread. #bulletjournal
One "x" = each pill ... # of boxes = max # for each day. #ChronicLife

One of those mornings where your sinuses kick you off your vent & you wake 2 hrs later feeling like your heads falling off #ChronicLife

Monday, November 21, 2016

Made an appointment with my lung dr to be re-certified for my med O2 & to get a RX for my vent mask bc its an old model. #ChronicLife

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Also not sure how my vent disposes bad air bc my mask doesn't have slits.

Tech: She breaths out from her mouth

Me: No I don't #ChronicLife

Sunday, November 20, 2016

So we cleaned out the spare room ... 15yrs worth of stuff I've collected. We have enough hand lotion & body spray to last 5yrs. Need some?

Saturday, November 19, 2016

Been out since 8:30am ... I think I'm due hermit time now ♡

Happy Sat!! Hope it's relaxing &/or productive. Whatever's your cup of tea 😊

Tuesday, November 15, 2016

 Can't wait for Thurs when I can hide in the house again ♡

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Getting lost 2x in the city during rush hour did not help me recover from last night's drive on the thru way.

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Did I ever mention how much I enjoy when other people drive? It allows me to hide during left turns across 3 lanes ... but not yesterday

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Tonight BF is driving ♡♡

Sunday, November 13, 2016

12:05am and I'm wide awake ... I stopped drinking coffee 12hrs ago, give me sleep :(

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If I was writing it would be one thing but I'm not -_-

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1 hour later ....

 Checked the mail & found a "are you still disabled" packet from @SocialSecurity. Just went through this not 2yrs ago #chroniclife

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What part of "permanently disabled since birth" do they think will change? Jokes on them, I've gotten worse. #chroniclife

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The more independent & "normal" I try to be the more I'm reminded I'm not with lovely additions to my file. 😡 #chroniclife

"Morgel wondered what her mother might want to talk to her about ... She hadn’t stolen leftover desserts in almost a year" #NaNoWriMo2016

I'm around 11k words short & don't care. Each bar is higher than the last & this is the most developed my story's ever been. #NaNoWriMo2016

I think I learned why coffee helps me focus & why albuteral helps with my anxiety in stressful situations: http://healthline.com/health/adhd/ca...

Saturday, November 12, 2016



My best friend this morning ... #LastPost for the day. Have a good morning everyone!! #HappySaturday


🐈 Just saying "morning" to old friends. 🐕 #petlovers

Ibuprofen for headache ✔ ... Dogs fed & out ✔ ... Ordering a good new night's sleep online 🚫

Sinuses shut down on me all yesterday so no vent. Horrible sleep, head full of CO2 & luckily just dehydrated. #ChronicLife #CO2Retention

Tuesday, November 08, 2016

This is the best ♡ #DeafWizards #DisabilityAwareness #HarryPotter

Monday, November 07, 2016

History must never forget the 3rd reich, lest we repeat. The furnace where they disposed of the disabled.  http://historicaltimes.tumblr.com/post/152870200...

Saturday, November 05, 2016


So not the BEST progress but its still progress 😅 #NaNoWriMo2016

Tuesday, November 01, 2016

Don't write on tabs ... don't write on tabs ... don't write on tabs ...


That moment you go to move a tab & remove part of your entry. #wtfmoment ... Guess that tab's staying put. #bulletjournal

Monday, October 31, 2016



Really enjoying the time-ladder to track my time. Each task has a number & that's used on the ladder. #bujo #bulletjournal #timemanagement


All set for November in my #bulletjournal ♡ #dailyspread #bujo

Sunday, October 30, 2016



As bad at games now as I was then. #arcadegames #childhoodmemories

 So didn't get the "main" stuff done today but did get lost of smaller things. Pretty productive considering I woke 6 hrs ago 😎

Friday, October 28, 2016

My stitching is getting better with each section. It makes me want to redo the other side ... #halloweencostume #sewing

Thursday, October 27, 2016


Just stitching feathers to tule. Doesn't everyone do this? #halloweencostume #sewing

Monday, October 24, 2016

I caved & bought another moleskin to set up my November #bujo in ... it's not too soon, right? #bulletjournal

Quote Courtney @co2infused on Oct 21, 2016
Since my #NaNoPrep #bulletjournal it's getting harder to open up my regular #bujo with the lined paper. It's almost full but I want grid 😭

#Pumpkincarving! 🎃 ... Hi I'm Courtney & I sniff pumpkin corpses before I eat their guts 😍 #PumpkinScentedHeaven  #Halloween

Sunday, October 23, 2016

Lots of fun yesterday but my nose & chills are telling me I pushed a little far. Back to my #NaNoPrep notebook. #chroniclife

Saturday, October 22, 2016


Awesome @TheSheepdogs concert tonight! ♡ Now for sleep; my legs & lungs are exhausted 😪

Thursday, October 20, 2016

Since my #NaNoPrep #bulletjournal it's getting harder to open up my regular #bujo with the lined paper. It's almost full but I want grid 😭

This was today ... or rather has been this week ... not sorry 🤓 😎 #NaNoPrep
When you forget what Bagel Bites actually are & your looking in the fridge for bite-sized bagels. #brainfog #thinkingliterally

Wednesday, October 19, 2016

{/facepalm} I'm putting so much attention in remembering how to write in cursive that I keep misspelling words. #bulletjournal #handwriting 
Fingers crossed, this insurance stuff should be worked out now  >.> #chroniclife

My face just now when I realized I surpassed 100 followers!! Thank you for joining me on this journey <3

Tuesday, October 18, 2016


Also quite proud of my indexing method. #bulletjournal

Sunday, October 16, 2016

After @BohoBerry's #NaNoWriMo video, I just bought a @moleskine to replicate. Wishing there were more accessible #USAMade grids out there!

Saturday, October 15, 2016

Might need to buy a typewriter for next year's #NaNoWriMo 🙃 .... I miss playing on my Dad's old word processor. #90sKid #childhood 

There's 3 different cultures in my story & I think of HP & LOTR & how in depth the worlds can get & I get overwhelmed. #NaNoPrep #JustWrite

Friend just sent this to me. "Oxygen bar" ... does sound way cooler than "concentrator." I'm calling it that from now on. #marketingstrategy


 I don't have characters. I have "charcters" ... look at me practicing written accents lol #NaNoPrep #NaNoWriMo2016


Friday, October 14, 2016

Checking out @darkstarorch & loving it! Definitely seeing them again ♡ Thanks @AllWNYRadio for the tickets!! #GratefulDead

Wednesday, October 12, 2016

That moment you realize there's one last wonton left in the soup and you savor it's goodness ♡ #ItsTheLittleThings 

Tuesday, October 11, 2016

Mission to figure out this stomach stuff lead to getting x-rays earlier today. Tech told me to stop over achieving at life XD #chroniclife

Saturday, October 08, 2016

Ate 1/4 of a salad yesterday that felt like turkey dinner ... this isn't fun. And I forgot to call my Dr's for that RX. #neednewstomach

Wednesday, October 05, 2016

Felt better today. 90% better when I went to my Dr's app. & then down to 70% as the day went on . But only lvl 1 stomach pain. #stillbetter

Tuesday, October 04, 2016

PS: Improperly swallowed generic-form-GasX tastes like peppermint. At least it's not gross while I burp it up ...


All this and no thermometer. BF jokes I have a pharmacy in this desk but apparently I don't have a thermometer.  #chroniclife

Monday, October 03, 2016

Anyone else ever get radiating pain from eating butter-toasted rolls? Really stomach? It was just bread & butter 😖 #chroniclife

Headache gone, eyeballs still hurt, radiating stomach pain has decreased but still there. Gah 😧 ... #chroniclife

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Errin spooniesnaps: @spooniesnaps on Oct 3, 2016

I hope your day got better

Courtney: @co2infused on Oct 5, 2016

Thank you so much ♡ That day didn't but yesterday was, and today was better than that.

Friday, September 30, 2016

31 days till Halloween!! What's everyone being this year? 🎃🎃🎃

Monday, September 26, 2016

The sleeping giant ♡ ... Last night was 90% better. #furrybrother

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We also explored the dog park and met some friends, including a Great Dane who was 2in taller & it freaked him out XD

Sunday, September 25, 2016

Joints feel so stiff. The #furrybrother is over, so sleep wasn't allowed. Coffee infusion please? Prayers the rest of the week is better 😪

Friday, September 23, 2016

Meet my 19th great-grandfather: Henry De Gotham (haha, Batman) Now about that 12th century king ... #genealogy #nosleep4me

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Found my 30th great-grandfather. To Lincolnshire, EN from Normandy, FR. His son became an English Lord! #PartyLike1030AD #genealogy

Thursday, September 15, 2016

So my vent tech was in shock bc I gave back my portable concentrator. He said I'm the 1st; they have a waiting list for them. #chroniclife

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I'm also his lightest weight client & w/ a bad back. He agreed & laughed as he left with it. Sticking with the tanks. #chroniclife

Thursday, August 18, 2016

Really enjoying having this notebook for #NaNoPrep ♡🖋♡ 📖  #NaNoWriMo #bulletjournal


Saturday, March 05, 2016

A beautiful tale about playground curiosity and new friendship ♡

Quote The Mighty @TheMightySite on Mar 5, 2017

When no adults stopped a girl's questions about my daughter's skin https://themighty.com/?p=391637

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I'll always be thankful of how my own parents encouraged me to speak for myself about my conditions & not be offended by genuine questions.

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I've made a point of emphasizing the normality of what I live with & for the most part had positive -occasionally perplexed- responses to it