Wednesday, November 30, 2016

No matter how many clothes I get rid of my closet never seems empty. I swear it multiplies as I sleep 😫 #downsizing #fail

Friday, November 25, 2016

That moment when your comfy in bed & realize the vent tubing popped off.



As for #NaNoWriMo2016: I lost my steam. I didn't get anything written this past week. But I'm not giving up ... I will finish it <3


I hope you had a crazy #Thanksgiving! Be safe this #BlackFriday ... Me? I'm staying home with music <3

Tuesday, November 22, 2016


This is what happens when you forget to cap your micro-fine pen before zipping it up the night before 😯 #bulletjournal

Added this nifty medicine tracker to my daily spread. #bulletjournal
One "x" = each pill ... # of boxes = max # for each day. #ChronicLife

One of those mornings where your sinuses kick you off your vent & you wake 2 hrs later feeling like your heads falling off #ChronicLife

Monday, November 21, 2016

Made an appointment with my lung dr to be re-certified for my med O2 & to get a RX for my vent mask bc its an old model. #ChronicLife

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Also not sure how my vent disposes bad air bc my mask doesn't have slits.

Tech: She breaths out from her mouth

Me: No I don't #ChronicLife

Sunday, November 20, 2016

So we cleaned out the spare room ... 15yrs worth of stuff I've collected. We have enough hand lotion & body spray to last 5yrs. Need some?

Saturday, November 19, 2016

Been out since 8:30am ... I think I'm due hermit time now ♡

Happy Sat!! Hope it's relaxing &/or productive. Whatever's your cup of tea 😊

Tuesday, November 15, 2016

 Can't wait for Thurs when I can hide in the house again ♡

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Getting lost 2x in the city during rush hour did not help me recover from last night's drive on the thru way.

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Did I ever mention how much I enjoy when other people drive? It allows me to hide during left turns across 3 lanes ... but not yesterday

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Tonight BF is driving ♡♡

Sunday, November 13, 2016

12:05am and I'm wide awake ... I stopped drinking coffee 12hrs ago, give me sleep :(

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If I was writing it would be one thing but I'm not -_-

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1 hour later ....

 Checked the mail & found a "are you still disabled" packet from @SocialSecurity. Just went through this not 2yrs ago #chroniclife

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What part of "permanently disabled since birth" do they think will change? Jokes on them, I've gotten worse. #chroniclife

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The more independent & "normal" I try to be the more I'm reminded I'm not with lovely additions to my file. 😡 #chroniclife

"Morgel wondered what her mother might want to talk to her about ... She hadn’t stolen leftover desserts in almost a year" #NaNoWriMo2016

I'm around 11k words short & don't care. Each bar is higher than the last & this is the most developed my story's ever been. #NaNoWriMo2016

I think I learned why coffee helps me focus & why albuteral helps with my anxiety in stressful situations: http://healthline.com/health/adhd/ca...

Saturday, November 12, 2016



My best friend this morning ... #LastPost for the day. Have a good morning everyone!! #HappySaturday


🐈 Just saying "morning" to old friends. 🐕 #petlovers

Ibuprofen for headache ✔ ... Dogs fed & out ✔ ... Ordering a good new night's sleep online 🚫

Sinuses shut down on me all yesterday so no vent. Horrible sleep, head full of CO2 & luckily just dehydrated. #ChronicLife #CO2Retention

Tuesday, November 08, 2016

This is the best ♡ #DeafWizards #DisabilityAwareness #HarryPotter

Monday, November 07, 2016

History must never forget the 3rd reich, lest we repeat. The furnace where they disposed of the disabled.  http://historicaltimes.tumblr.com/post/152870200...

Saturday, November 05, 2016


So not the BEST progress but its still progress 😅 #NaNoWriMo2016

Tuesday, November 01, 2016

Don't write on tabs ... don't write on tabs ... don't write on tabs ...


That moment you go to move a tab & remove part of your entry. #wtfmoment ... Guess that tab's staying put. #bulletjournal