Disability Paperwork Tip#1001: If you receive multiple copies of a notice, go w/ the 1 w/ the most recent date. #thestruggleisreal

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This 1 wasn't bad - only received 2 versions. Last 1 had 4 versions & I called to ask which 1 was accurate. #thestruggleisreal

When you want to do some reading while you're on your vent. #chroniclife

Also, why am I up this early? {/shrugs and goes on computer}

When you try to roll out of bed & your back goes "nope" ... I'm up but my upper-back's not happy #chroniclife #scoliosis

This isn't the 1st time I've heard a story like this 😒 #disabilityrights http://wgrz.com/news/local/man...

Love is wrestling over who gets to make coffee ♡ #relationship

Low oxygen made mine and my boyfriends outing interesting for me. https://medinheritance.wordpress.com/2017/03/17/day-in-the-life-031617/

Trying to read the American Health Care Act. Its like I'm missing 50% of the puzzle pieces because I don't have the referenced texts.

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I need a printer ... More researching tonight. I don't envy law professionals ... you have my respect 😵

Found decorative dice in our back closet. The little things you find left in an old house ♡

After a long hiatus & secretly deleting it, my blog has been relaunched. Look out for upcoming posts! https://medinheritance.wordpress.com/2017/03/15/im-back/

There's enough snow to hide the puppy statue in the garden

After insurance my monthly bill is $600-$1000. Without #Medicaid I wouldn't be able to afford it. #chroniclife

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W/out my vent my body would slowly poison myself to death in 1-2 years. Almost happened in middle/high school #chroniclife

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W/out supplemental  oxygen my ability to function both physically & cognitively becomes limited #chroniclife

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I feel like I pay rent for my own life. W/out insurance + gov assistance I can't afford to live in my body #chroniclife

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My twisted sense of humor pictures the Grim Reaper collecting the payment: "You did good. See you next month" #chroniclife

 

How I enjoy the smell of antiques in the morning ♡

Hey @QuestDX, I just got blood drawn & the phlebotomist I had was awesome! One hit stick & we gabbed the whole time.

Yesterday we had snow fall & for the 1st time I wasn't out of breath bc my car didn't need to be dusted. Woot for a garage! ♡ #chroniclife

After a week we're all moved in, necessities connected, old keys turned in. Spent today catching up on all I missed last week. #movingweek

Happy #RareDiseaseDay!!! #chronicillness #chroniclife

When you're BF tosses your puffer as a joke, the medicine part falls out & now is lost in the mess of boxes that is our house. #hisremorse

Windows are opened in the house! I'm going to enjoy this weather while it lasts ... let the breeze in!! 🤣

I hope I'm not catching what ever my BF has ... again. I've never gotten sick 3x/season & he normally doesn't get sick period. Come on! 😫